Calling out to you, internet.
Two of my dear friends, going back to high school and beyond, had a baby girl a few weeks ago. They named her Matilda Mary, and she joined her adorable big brother Parker. Even though my friends have moved a lot in recent years, to Australia and back, and now to New York, I’ve followed their little family through their blog and feel like I’ve gotten to kind of know the silliness of their son through photos and Kelly’s frequent updates. I read her pregnancy posts with anticipation, looking forward to another cute kid being added to the clan.
And there’s no doubt that Matilda is beautiful. But she’s also sick, suffering from acute liver failure and the doctors aren’t sure what else, and she needs all the love she can get.
She’s lucky in that she’s the daughter of two fiercely loving, bright parents, and they’ve been battling for her over the last few weeks at Mt. Sinai in New York City. She’s at the top of the transplant list, if it comes to that. She’s had a double exchange blood transfusion, and they’re waiting to see if that might cure her symptoms. They’ve been worried about sugar levels, and ammonia levels, brain damage and a world of other concerns, day in and day out.
But they’ve also been so thoughtful, my friends, in caring for her. Upset they couldn’t always hold her when she’d cry, they took the nurse Gina’s advice and got her something to hold: Gina the Giraffe.
After one particularly harrowing night, Kelly wrote on her facebook wall, “Tyler and I have rallied our spirits and have come up with a plan to hold Matilda more, snuggle more, sing more, read more, and enjoy every moment with Matilda more. She is a gift and we plan on keeping her forever.”
It’s been an emotional couple of weeks, and I find myself thinking of them all day and checking in over and over again. I tear up a lot on the bus. I know people go through terrible things, but I don’t feel old enough to have friends going through this with their kid.
But luckily, Kelly and Tyler are handling all of this with a grace beyond their years.
So, what can you do? Well, there’s a website to donate to Matilda’s cause. And I won’t try to pretend that money doesn’t matter.
There’s also an option to have a meal delivered to them in the hospital, which is pretty easy to do, and feels like something tangible.
But also important, really really important, is knowing that more people are thinking about her and praying for her. Being so far from family right now, Kelly and Tyler have said that the thoughts and prayers bring them comfort. And I believe in the power of collective thought, or prayer, or however it is you might see it.
So in those quiet in-between moments, please keep my friends and their baby in your thoughts. It would mean a lot to me, and to them.